Festivals & Culture, a programme of Black Albinism ↩ Return to blackalbinism.org

What we create,
express and influence.

Music, fashion, photography, film, poetry and performance by persons with albinism. Not a theme somebody else programmes for us once a year.

Culture at Black Albinism

There is a culture of albinism, and it is not a medical one.

It is the hat somebody chose rather than the hat they were given. It is a set played to a full room. It is the way a group of friends arranges itself for a photograph so the light is behind them. None of that appears in a policy brief, and all of it changes what a stranger expects to see.

A model with albinism walking the Black Albinism runway in a bold printed coat.
FashionThe runway, and the protective wear that came off it.
A singer with albinism performing into a microphone.
MusicMembers who perform, produce and play, booked rather than invited to watch.
A poet with albinism performing on stage with a microphone.
Poetry and spoken wordThe form that has carried more of this than any other.
A studio portrait of a man with albinism in a hat.
PhotographyOur own archive, shot by and of this community.
DJ Smollet at the decks, in a cap and dark glasses, playing a set.
PerformanceThe stage at every festival, and the rooms in between.
Two people filming on a phone at a Black Albinism event.
FilmShort films, including The Rejected Treasure.

Culture in action

What we have made and what we have carried.

The runway

Three categories, worn

Born in 2023 out of Catwalks for Climate Advocacy and now the heart of every edition. Sun protective wear, sustainable wear, traditional and creative wear.

See the runway
Film

The Rejected Treasure

A short film made out of the campaigns we have run under #BlackAlbinism since 2018.

Supported

Reflections: The You In My Story

A poetry event we backed, curated around first person accounts and performances by poets drawing on their own lives.

Our creators

The people making it.

Jairus Ong'eta, who performs as Jay PoeTree, photographed at an event.

Poet, performer, para athlete

Jay PoeTree

Jairus Ong'eta · Mr Albinism Kenya

He found poetry in class five, in school drama and music festivals, and then went looking for the parts of it nobody was teaching. He says it plainly: he has always found it hard to say things out loud, and poetry is the form that lets him. There are things he can only say in a poem.

In February 2025 he became the first person with albinism to represent Kenya on the global stage in para athletics, taking gold in the men's 100m and 400m at the World Para Athletics Grand Prix in Dubai. He won silver and bronze in bench press and powerlifting at the IBSA championships in Almaty, and he is competing at the World Para Athletics Championships next year in a bid to qualify for the 2028 Olympics in Los Angeles. The Government of Kenya has since recognised him with a Shujaa commendation.

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Asked whether he would trade albinism for melanin, he says no. Growing up, people were surprised when he did well, as though the condition were the ceiling. Without albinism he would not have been Mr Albinism Kenya and would not have raised what he has raised through his work. The one thing he would change is the sunburn, and his eyesight.

On whether poetry pays, he is equally direct. It can, through corporate work, but the industry in Kenya moves slowly and treats poets as an opening act, which teaches audiences that poetry is not serious. Earning from it, he says, takes building a personal brand and then making that brand yield.

What he is building

Taste of My Skin

Founded in 2018, it is built on two convictions. The first is that every person is original: there is no standard human being and no default version of normal, so there is no basis for the comparison that discrimination runs on. The second follows from it, that being original is not the same as being complete, and the rest has to be built with discipline and the discomfort of showing up. Through poetry, spoken word, music and first person stories the platform argues the first. Through athletics it demonstrates the second.

It becomes a foundation in 2027, with a year round outreach circuit into schools, a mentorship arm and a documentation archive.

This is the first profile, not the only one. If you make work and you have albinism, we want it here. Tell us about it.

The cultural archive

Kept, because work that is not recorded has to be argued for from memory.

Support

Help us keep creating the space.

One afternoon reaches people a year of campaigning does not. It is also the one place where a partner can stand next to this community without it looking like charity.

Festivals and events

The day itself: the venue, the stage, the pitch, the sound, the water and the people who make it run.

Creative opportunities

Commissions, materials and stage time for members who make things, so a platform is an income and not only an audience.

Community participation

Transport, access and the practical costs that decide whether somebody can be in the room at all.

Documentation

Photography, film and the archive, because work that is not recorded has to be argued for from memory every time.

What we will not do

We do not sell access to members, we do not stage anybody for a photograph, and no image of a person goes anywhere without that person's recorded consent. Those are not negotiable, and they are the reason the photographs look like this.