The people who do this.
A secretariat that runs it, a board that governs it, and community representatives who carry it where they live.
Secretariat
The team running the day to day
Alan Herbert
Executive Director
Shirleen Mwende
Communications Lead
Goldalyn Kakuya
Programmes Coordinator
Alphonse Okoth
Finance
Board
Our board of directors
Stephen Wafula
Board Chair
Senior Finance and Accounts Officer at the National Council for Persons with Disabilities, with over fifteen years in disability and albinism advocacy.
Grace Nzomo
Assistant Board Chair
A human resources professional of more than a decade and an advocate for the rights of persons with albinism. Named Most Outstanding Advocate and Role Model for Albinism Rights at the 2024 Luminary Awards.
Clinton Ontita
Board Treasurer
A finance professional with over five years in banking. He works with the finance department to keep the organisation’s accounts sound, transparent and compliant.
Ruth Wairimu
Parents’ Representative
Carries the perspective of caregivers, and particularly of mothers of children with albinism. A member for over four years, with a central role in community engagement and parent mobilisation.
Our champions
Community representatives
Our reach depends on people who are already trusted where they live. Representatives are the first point of contact for members outside Nairobi.
Faith Joseph
Kitui County
Jeriter Mutinda
Machakos County
Zippie Ntinini
Kajiado County
Our partners
Those who help us do the work
Join us
There is a seat here for you.
Volunteer, represent your community, sit on a committee, or bring a skill we do not have yet.