The Albinism Foundation Of East Africa: Empowering Persons With Albinism in East Africa

The Albinism Foundation of East Africa (AFEA) has been tirelessly working since its establishment in 2008 to improve the lives of individuals with albinism in the East African region, with its headquarters situated in Kenya. Despite hefty huddles, huddles that many other non-governmental organizations face as well, the organization remains dedicated to making a difference, one step at a time, one person with albinism at a time.

AFEA focuses on various key areas including community and customary land rights, education, environmental justice, family support, governance, accountability, health, livelihoods, traditional justice, and promoting social acceptance of individuals with albinism. It operates as a non-governmental organization registered as a Trust in Kenya, aiming to ensure that all persons with albinism and their families enjoy their human rights, are integrated into society, and have the opportunity to fulfill their social, economic, and civic potential.

The foundation's approach involves lobbying and advocating for the rights of individuals with albinism at both national and county levels, as well as educating for transformation and empowering through technical, organizational, and leadership skills development, and resource mobilization efforts. Despite being headquartered in Kenya, AFEA recognizes the regional nature of the challenges faced by individuals with albinism and thus, implements programs aimed at bringing about change across the entire East African region. The board of trustees comprises individuals with albinism, parents of children with albinism, and supporters from diverse sectors committed to addressing the challenges faced by the community.

Their operations primarily focus on public education and awareness campaigns aimed at demystifying albinism and reducing social isolation and exclusion. Additionally, the foundation engages policymakers in sectors such as health and education to advocate for policies that improve access to essential services for individuals with albinism. Regular meetings are held for individuals with albinism and their parents to provide a platform for discussion, support, and mentorship. 

Despite logistics huddles, the Albinism Foundation of East Africa remains committed to its mission of advocating for the rights and well-being of individuals with albinism, striving to create a more inclusive and supportive society for all.